Fighting Alzheimer’s fear

Alzheimer; News from the web:

People with dementia are still people, and friends and family members shouldn’t ignore them or underestimate their abilities — that’s the message of a new social media campaign from the Alzheimer Society of Canada.

“The day you receive a diagnosis from your doctor, the minute you walk out of that office, you’re no different,” said Maria Howard, the CEO of the Alzheimer Society of B.C.

#StillHere

Read all about it HERE

call to action

Alzheimer; News from the web:

In a critical, much needed bipartisan effort—thanks to the leadership of Republican Sen. Roy Blunt of Missouri, Democrat Sen. Barbara Mikulski of Maryland, and Republican Sen. Susan Collins of Maine—the Senate has recommended that federal funding for Alzheimer’s research be increased by $350 million in Fiscal Year 2016. It’s imperative that Congress approves it. CALL YOUR MEMBER OF CONGRESS TO MAKE THIS HAPPEN!

Read all about it HERE

Prostate cancer treatment and Alzheimer’s

Alzheimer; News from the web:

Although not undisputed, here is what researchers have just published:

In a study released Monday, the researchers found after analyzing two decades of data that men treated with therapy to suppress their hormones were about 88 percent more likely to get Alzheimer’s during a follow-up period of about three years compared with prostate cancer patients who did not receive the treatment.

Read all about it HERE

More trouble in Alzheimer Association’s land

Alzheimer; News from the web:

As we feared, the first chapter from the Alzheimer’s Association has decided to disassociate to avoid being centralized. Although there will be pros and cons to centralization and how you run the programs, the thing that will really divide the efforts to combat this terrible disease is when chapters go independent and the Alzheimer’s Association starts a new centralized chapter right next to it to ensure national coverage.

Folks, we are about to waste lots of money, effort and goodwill.

At this moment you have the national Alzheimer’s Association and then there is the New York Chapter and about 53 other chapters. Potentially, if none of them wants to be centralized, there could be around 100 different organizations all trying to accomplish the same. What a waste!

Read all about it HERE

Alzheimer’s association in centralization move

Alzheimer; News from the web:

The Alzheimer’s Association is  moving to a centralized structure. The now independent chapters can choose to join the centralized organization or stay independent but then loose the Alzheimer’s Associations recognition.

As there is always a balance between local and central control like federal and state authority is always in debate, there will be pros and cons to both models.

We wish all involved wisdom to deal with this.

However looking in the article and the filings with the IRS it did show that the CEO makes over a million dollars a year and a number of VPs over half a million dollar annually. That may be competitive in charity land but it does not sit well with me. (The red cross ceo does not make over 600K, no one in doctors without borders makes over 200K, in the american cancer society a number of folks over 1.5 million dollar and Habitat for Humanity leaders make around 200k or just below)

These are big jobs and should be done by very capable folks but the salaries just don’t look right and I would expect them to have a good salary but lets be realistic and not compete with the commercial world. Anyway, HERE is more on what seems competitive in charity-land.

Read all about it HERE

Dementia International, are you a member?

Alzheimer; News from the web:

In their own words:

Dementia Alliance International (DAI) is a collaboration of like-minded individuals diagnosed with dementia providing a unified voice of strength, advocacy, and support in the fight for individual autonomy for people with dementia.

DAI was established in January 2014 to promote education and awareness about dementia – in order to eradicate stigma and discrimination – and to improve the quality of the lives of people with dementia.

The aim is to bring the community composed of those with dementia together as one strong voice to urge the government, private sector, and medical professionals to listen to our concerns and take action to address this urgent global crisis. It is our firm belief that working together, we will identify concrete action for implementation with the international community, and in the process, ensure our human rights are being fully met.

Read all about it HERE