New Jersey splits off

Alzheimer; News from the web:

The ongoing saga of the collapse of the Alzheimer’s society. This will cause confusion and I’m afraid that the well intended move will not help in the near future.

Read all about it HERE

Fighting Alzheimer’s fear

Alzheimer; News from the web:

People with dementia are still people, and friends and family members shouldn’t ignore them or underestimate their abilities — that’s the message of a new social media campaign from the Alzheimer Society of Canada.

“The day you receive a diagnosis from your doctor, the minute you walk out of that office, you’re no different,” said Maria Howard, the CEO of the Alzheimer Society of B.C.

#StillHere

Read all about it HERE

call to action

Alzheimer; News from the web:

In a critical, much needed bipartisan effort—thanks to the leadership of Republican Sen. Roy Blunt of Missouri, Democrat Sen. Barbara Mikulski of Maryland, and Republican Sen. Susan Collins of Maine—the Senate has recommended that federal funding for Alzheimer’s research be increased by $350 million in Fiscal Year 2016. It’s imperative that Congress approves it. CALL YOUR MEMBER OF CONGRESS TO MAKE THIS HAPPEN!

Read all about it HERE

Prostate cancer treatment and Alzheimer’s

Alzheimer; News from the web:

Although not undisputed, here is what researchers have just published:

In a study released Monday, the researchers found after analyzing two decades of data that men treated with therapy to suppress their hormones were about 88 percent more likely to get Alzheimer’s during a follow-up period of about three years compared with prostate cancer patients who did not receive the treatment.

Read all about it HERE

More trouble in Alzheimer Association’s land

Alzheimer; News from the web:

As we feared, the first chapter from the Alzheimer’s Association has decided to disassociate to avoid being centralized. Although there will be pros and cons to centralization and how you run the programs, the thing that will really divide the efforts to combat this terrible disease is when chapters go independent and the Alzheimer’s Association starts a new centralized chapter right next to it to ensure national coverage.

Folks, we are about to waste lots of money, effort and goodwill.

At this moment you have the national Alzheimer’s Association and then there is the New York Chapter and about 53 other chapters. Potentially, if none of them wants to be centralized, there could be around 100 different organizations all trying to accomplish the same. What a waste!

Read all about it HERE

Alzheimer’s association in centralization move

Alzheimer; News from the web:

The Alzheimer’s Association is  moving to a centralized structure. The now independent chapters can choose to join the centralized organization or stay independent but then loose the Alzheimer’s Associations recognition.

As there is always a balance between local and central control like federal and state authority is always in debate, there will be pros and cons to both models.

We wish all involved wisdom to deal with this.

However looking in the article and the filings with the IRS it did show that the CEO makes over a million dollars a year and a number of VPs over half a million dollar annually. That may be competitive in charity land but it does not sit well with me. (The red cross ceo does not make over 600K, no one in doctors without borders makes over 200K, in the american cancer society a number of folks over 1.5 million dollar and Habitat for Humanity leaders make around 200k or just below)

These are big jobs and should be done by very capable folks but the salaries just don’t look right and I would expect them to have a good salary but lets be realistic and not compete with the commercial world. Anyway, HERE is more on what seems competitive in charity-land.

Read all about it HERE

Dementia International, are you a member?

Alzheimer; News from the web:

In their own words:

Dementia Alliance International (DAI) is a collaboration of like-minded individuals diagnosed with dementia providing a unified voice of strength, advocacy, and support in the fight for individual autonomy for people with dementia.

DAI was established in January 2014 to promote education and awareness about dementia – in order to eradicate stigma and discrimination – and to improve the quality of the lives of people with dementia.

The aim is to bring the community composed of those with dementia together as one strong voice to urge the government, private sector, and medical professionals to listen to our concerns and take action to address this urgent global crisis. It is our firm belief that working together, we will identify concrete action for implementation with the international community, and in the process, ensure our human rights are being fully met.

Read all about it HERE

Undercover Alzheimer’s patient

Alzheimer; News from the web:

A film director went undercover in an Alzheimer’s home for 5 days and hold a symposium to, among other things, tell about his experiences.

“Keep in mind that everybody living with dementia — and I constantly use that phrase, people living with dementia — they are still individuals, are still persons and that’s starting point from which we need to relate to them,” he said. “Even people with more advance dementia are absolutely still there, we just need to know how to reach them.”

Read all about it HERE

Alzheimer’s care, there is an app for that

Alzheimer; News from the web:

If you care for an Alzheimer’s patient you will recognize this situation; you have visited your mom with Alzheimer’s and after your visit your sister visits her. She asks mom; “Has my brother been visiting you lately” and the mom will most passionately say things like: “your brother!!! haven’t heard from him in months!!”…. but you just left the facility.

Now there is an app where families and caregivers can keep track of who has been to see the patients and….. to verify the information you have been told during your visit.

Read all about it HERE

Art and Alzheimer’s

Alzheimer; News from the web:

Art and medicine have long been intertwined – from the earliest depictions of human anatomy to modern art therapy. A new art exhibit (“Interstice: Memory, Mind, and Alzheimer’s Disease,” open through September 9 in the Granoff Center for the Creative Arts at Brown University) takes that relationship in a new direction. A neuroscientist and artist teamed up with fellow artists to explore what it’s like to have Alzheimer’s Disease.

Read all about it HERE

Can Frankenstein help Alzheimer’s?

Alzheimer; News from the web:

A near-complete human brain comparable with that of a five-week-old foetus has been grown in a laboratory dish.

The brain ‘organoid’ was created from reprogrammed skin cells and is about the size of a pencil eraser.

Scientists hope the lumpy mass of functioning nerve cells and fibres will prove to be a valuable research tool for non-animal testing of new drugs and investigating brain disorders such as Alzheimer’s.

Read all about it HERE

Eye see….. I forget

Alzheimer; News from the web:

Journalism junior Michael Baez, theatre and dance senior Callie Hacker and theatre and dance junior Selina Rosales created “Eye See … I Forget” to raise awareness about Alzheimer’s disease, a progressive neurodegenerative illness that impacts memory and cognitive function.

Read all about it HERE

The life story network for alzheimer

Alzheimer; News from the web:

Pippa Kelly made me aware of the great work the Life Story Network does.

Discovering George Arthur Moss through his Life Story Book reminded me that we are all so much more than the aspect we present to a stranger for the very first time.  When we’re independent and can communicate clearly, this doesn’t much matter, but if and when our health fails or for some reason we become dependent on others, it is vital for them to know who we are.  Of course it is.  Put like that, it sounds so obvious, so simple, so human.

Read all about the Life Story Network HERE Pippa’s blog is HERE

Alzheimer musical

Alzheimer; News from the web:

Developed in partnership with Jeffrey Steiger, a pioneer of applied theater, who wrote the original book, music and lyrics, as well as directs Tangles, a musical play and educational outreach initiative concerning cognitive impairment.

Read all about it HERE

Alzheimer mutations explained

Alzheimer; News from the web:

For the first time, a study reveals exactly how mutations associated with the most common form of inherited Alzheimer’s disease produce the disorder’s devastating effects. The paper upends conventional thinking about the effects of Alzheimer’s-associated mutations in the presenilin genes and provides an explanation for the failure of drugs designed to block presenilin activity.

Read all about it HERE

Become a Dementia Friend

Alzheimer; News from the web:

The UK government has launched the Dementia Friends scheme, which has been adapted from a similar program in Japan that recruited three million volunteers.

Meanwhile about a million people have been trained as Dementia Friend.

Dementia signs

  • Struggling to remember recent events
  • Problems following conversations
  • Forgetting the names of friends or objects
  • Repeating yourself
  • Problems with thinking or reasoning
  • Confusion in familiar places

Sessions in workplaces and town halls across the country will explain what dementia is, what it is like to have the condition and what people can do to help if they meet someone with the symptoms.

Read all about it HERE

New molecule identified that may delay Onset Alzheimer

Alzheimer; News from the web:

Scientists at the University of Cambridge have identified a crucial molecule that could put the brakes on the damage to the brain:

Samuel Cohen, who led the study at the University of Cambridge, said: “The big advantage is that we haven’t just come up with a drug and not really understood what it is doing. We’ve come up with a general strategy that could work.”

Read all about it HERE

Canada warns about Donepezil, an Alzheimer drug

Alzheimer; News from the web:

The prescription medication has been linked to a muscle breakdown called rhabdomyolysis and the neurological disorder NMS (neuroleptic malignant syndrome) in some patients.

Donepezil, sold under the brand names Aricept and Aricept RDT as well as generic equivalents, is used to treat the symptoms of mild to severe Alzheimer’s disease.

Read all about it HERE